So gently and using the greatest of care,

I started life with my own special flair.

Whether one eye is open or both are closed tight,

Many hearts I have stolen while fighting my fight.

I may be wee but mighty am I

Yet way too soon Iíll be saying goodbye.

Iím loved by so many, Iíd stay if I could,

My kidneys arenít perfect, donít work like they should.

Please donít lose faith, you know I am strong,

Iím in a great family, thatís where I belong.

 

October 6, 2008

 

 

My parents wrote this poem for me just after I was born, nine weeks premature.  That was July 24, 2005 and I weighed a stout 2 pounds 14 ounces!  The doctors said my kidneys werenít working and I would only be here for a few short weeks.  But many people prayed for me and God said I could stay longer.  I had end stage kidney failure and needed to go onto dialysis.  After six months, I got big enough and for the next two and a half years, I was on peritoneal dialysis six days a week and twelve to fourteen hours a day.

 

The good news is that I am no longer on dialysis because my Mom donated one of her kidneys for a transplant to me!  I no longer have end stage kidney because I have a kidney now and I am doing very well, thank you very much!  So, here I am, still doing the best I can and being loved by everyone I meet Ė doctors and nurses, friends and family, people in Ireland that probably wonít meet me and especially my Mom and Dad.  They are taking really good care of me and I know it is still a lot of work.

 

I have a lot of medication to take to prevent organ rejection and I still have to be careful about getting sick Ė my immune system is pretty weak.  But I am catching up on all the things I couldnít do before, like walking and talking a mile a minute.  Mom and Dad have a hard time keeping up with me now.  I am starting school at home and I guess Iíll have to learn to eat real food pretty soon. 

 

Grampa and Gramma Sharon are still taking care of this page for me.  I can use a keyboard now, it just puts out gibberish, though Ė something about having to hit the keys in the right order.   You can e-mail them if you want really big pictures of me (Grampa bought a new camera and Gramma uses it all the time!) or if you just want to see how Iím doing.

 

By the way, how about a new version of that poem:

 

So gently and using the greatest of care,

I started life with my own special flair.

Whether one eye is open or both are closed tight,

Many hearts I have stolen while fighting my fight.

I may be wee but mighty am I

And Iím doing better Ė everybody knows why.

My new kidneyís perfect!  Works just like it should!

I knew weíd get through it, I knew we all would!

Thanks for keeping the faith, you know I am strong,

Iím in a great family, thatís where I belong.

 

                                                                                                Love,

                                                                                                Jacob

 

 

Because, after all,

A personís a person,

No matter how small!

 

 

 
 
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